Saturday, December 13, 2008
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- *** Online book: The Voice of 12,000 Patients: Experiences & Expectations of Rare Disease Patients on Diagnosis & Care in Europe ***
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- Falling Apart At The Seams: My Life With Ehlers-Danlos
- Fawn Le May
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- How To Cope With Pain
- Musings of a Medical Zebra
- My Ehlers-Dansol Syndrome Adventure
- My Life with Ehlers-Danlos Syndrome
- Odyssey of an Oddity
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- Our Journey with Ehlers-Danlos Syndrome
- Pain As An Art Form -- NY Times
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