Ehlers-Danlos Syndrome, WTF? Diagnosed in 2008, trying to navigate a new status quo.
Just popped in from the UK to say Hello. I can't 'do that' but do have EDS hypermobility type. With all the pain that goes with it. Take care/
Hello to you too from Tennessee. :)I was diagnosed hypermobile for a year - 6/9 on the beighton score - before I began to be able to do the skin trick.Sorry you have EDS - it really sucks.Thanks for stopping by.
Nice skin trick! I'm glad you put up an EDS blog. Best wishes!
hey Russell :)
Hey there! That trick isn't so fabulous, is it? My problems don't manifest in ways that lend themselves to photography. I'm sorry that it's so painful and definitely sympathetic to what you're experiencing.
I think I pulled my cheeks in just looking at that! My cheeks are okay (at this point) but my stomach and arms/hands are all loose. Yay. Fun.So hi from Tasmania!
well I have a post-2012 occupation (circus) all set now LOL :Psorry lee :(& sorry you're similarly-affected Veronica
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Just popped in from the UK to say Hello. I can't 'do that' but do have EDS hypermobility type. With all the pain that goes with it. Take care/
Hello to you too from Tennessee. :)
I was diagnosed hypermobile for a year - 6/9 on the beighton score - before I began to be able to do the skin trick.
Sorry you have EDS - it really sucks.
Thanks for stopping by.
Nice skin trick! I'm glad you put up an EDS blog. Best wishes!
hey Russell :)
Hey there! That trick isn't so fabulous, is it? My problems don't manifest in ways that lend themselves to photography. I'm sorry that it's so painful and definitely sympathetic to what you're experiencing.
I think I pulled my cheeks in just looking at that! My cheeks are okay (at this point) but my stomach and arms/hands are all loose. Yay. Fun.
So hi from Tasmania!
well I have a post-2012 occupation (circus) all set now LOL :P
sorry lee :(
& sorry you're similarly-affected Veronica
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